[RHESOU (Registry in HErault Specialized in Onco-Urology) : the first French Registry specialized in Onco-Urology. One-year experience].

RHESOU (Registre de l’Hérault spécialisé en onco-urologie) : le premier registre français spécialisé en onco-urologie. Un outil méthodologique de recueil de données en onco-urologie. Bilan de faisabilité sur un an d’expérience

S.G. Trouche-Sabatier (1) , X. Rebillard (2) , F. Iborra (3) , D. Azria (4, 5) , J.-P. Daures (2) , G. Poinas (2) , N. Abdo (3) , O. Delbos (6) , A. Gevorgyan (7) , S. Marchal (6) , R. Guillon (2) , I. Millet (3) , P.-J. Lamy (8) , O. Lauche (9) , R. Reis-Borges (10) , I. Serre (3) , D. Topart (3) , B. Tretarre (1)

1 Registre des Tumeurs de l'Hérault
2 Clinique Beau Soleil [Montpellier]
3 CHRU Montpellier - Centre Hospitalier Régional Universitaire [Montpellier]
4 IRCM - U1194 Inserm - UM - Institut de Recherche en Cancérologie de Montpellier
5 ICM - Institut régional de Cancérologie de Montpellier
6 Urodoc [Montpellier]
7 Polyclinique Saint Privat
8 IMAGENOME - Institut médical d'anayse génomique
9 Clinique Clémentville [Montpellier]
10 Inopath Labosud Alco [Montpellier]

Purpose: In 2016, the Herault tumor registry collected 1961cancers in urology (21.4 % from all Herault cancers this year). RHESOU was created to complete RTH' data with specific parameters in onco-urology. The aim of this study is to describe RHESOU and to give some examples with our first results.Material and methods: In November 2018, RHESOU (Registry HErault Specialised in Onco-Urology) was founded with the same registry recommendations. It collects specific oncologic parameters and also complete RTH's data. For each urological cancer, a specific survey with different choices was performed to collect a maximum of data which could be present in patients' file. These surveys were used for urological cancers cases that live in Herault in 2017.Results: In 2017, we collected 970 prostate cancers, 581 bladder cancers, 212 kidney cancers, 51 upper excretory tract cancers, 28 testicle cancers and 9 penil cancers. Our urological data collection gives many possibilities to create many requests for detailed analysis in urological cancers. In this article, we reported data from kidney, bladder and prostate cancers.Conclusions: RHESOU is a new tool opened to the different urologic corporations (urologists, pathologists, oncologists, radiotherapists, radiologists) that permits an overview in urological cancers in Herault. Finally, one important aim is that this tool will be adapted when new treatments or new important parameters appear in the years ahead.Level of evidence: 3.

Mots clés: Base de données; Cancers génitaux masculins; Cancers urologiques; Cancers urologiques féminins; Data collection; Epidemiology; Male and female urological cancers; Male genital cancers; Registre; Registry; Épidémiologie

Domaines: Urologie et Néphrologie

S.G. Trouche-Sabatier, X. Rebillard, F. Iborra, D. Azria, J.-P. Daures, et al.. RHESOU (Registre de l’Hérault spécialisé en onco-urologie) : le premier registre français spécialisé en onco-urologie. Un outil méthodologique de recueil de données en onco-urologie. Bilan de faisabilité sur un an d’expérience. Progrès en Urologie, 2020, 30 (16), pp.1038-1044. ⟨10.1016/j.purol.2020.09.015⟩. ⟨hal-03337569⟩